FIECON Patient Perspectives

Total duration:6 h 48 min

	The patient journey \| Citrullinaemia Type 1	FIECON Patient Perspectives	26:02
	The patient journey \| Sickle cell disease	FIECON Patient Perspectives	31:56
	The patient journey \| Metastatic breast cancer	FIECON Patient Perspectives	41:38
	The patient journey \| Von Hippel-Lindau syndrome (VHL)	FIECON Patient Perspectives	17:03
	The patient journey \| Leber hereditary optic neuropathy (LHON)	FIECON Patient Perspectives	17:35
	The patient journey \| FOP (Fibrodysplasia Ossificans Progressiva ), Lexi's story	FIECON Patient Perspectives	29:55
	The patient journey \| SATB2-associated syndrome (SAS)	FIECON Patient Perspectives	21:55
	The patient journey \| Acanthamoeba keratitis	FIECON Patient Perspectives	34:57
	The patient journey \| Dravet syndrome	FIECON Patient Perspectives	24:03
	Access for rare diseases - how to navigate conflict, compromise and collaboration	FIECON Patient Perspectives	35:09
	The patient journey \| Pompe disease	FIECON Patient Perspectives	47:24
	The patient journey \| Fibrodysplasia Ossificans Progressiva (FOP)	FIECON Patient Perspectives	26:39
	The patient journey \| Migraine	FIECON Patient Perspectives	20:07
	The patient journey \| ATTR (transthyretin) amyloidosis and wild type amyloidosis disease	FIECON Patient Perspectives	33:55